A little while ago, my pediatric G.I. doctor brought up the idea of a support group she was trying to form. She has a lot of teen girls with MCAS that are going through the same things as me. It’s nice to know that I’m not alone in figuring out how to balance my illness with the life I want. But, for now, I just don’t want to talk about my feelings with strangers.
Sometimes, I’ll avoid people I know to prevent an awkward encounter, because I know that I’m going to get asked about how I’m feeling, or how I’m doing, or how’s school going. That can really stress me out. I usually just give some bland answer like, “Hi…I’m doing okay...I’m hoping to be back at school really soon.” I am thankful that I have people in my life that are concerned for me, and care about me and what’s going on in my life, but sometimes I just need to forget about my conditions, my symptoms, and what I call “the downfall of Ivy.” Joining a support group would just put a spotlight on all of my illness-related issues. For the time being, I am just going to focus on getting back to school and figure out the rest as I progress in my recovery. Although I’ve heard a lot of great things about support groups, and think that for some people it really helps, I just don’t think it is for me, at least not right now.
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Ivy/POTS//EDS//MCAS//SIBO/
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December 2018
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