Putting back in a feeding tube has been brought up to me a few times. Usually, it is whenever I’m in a flare up so I’ve lost a significant amount of weight. I’ve always said, if I ever drop below 125 lbs. for longer than 1 week, then I’d be willing to have another feeding tube. Since I’m 18 now, I have to make a conscious decision that if I’m at a point when I can no longer support myself orally, and am clinically malnourished (meaning I’m at a higher risk for disease and death), I will have to help myself by letting other people take control. Until then, though, I’ll rely on my own ability to get proper nutrition.
There is another option though. Instead of putting in another feeding tube (either through the nose or a direct port), I could go back on a medication, thats side effects makes me ravenous: Cyproheptadine. I originally tried it about a year ago as a nausea medication. It didn’t help my nausea at all, but it made me so hungry I was stuffing my face without end. Since my main source of nausea is food, I was miserable. I couldn’t stop putting food in my mouth; I ended up gaining 10 pounds within the 2 weeks I was taking it. Though everyone, my doctors, parents, and I, were happy I gained back some weight, we agreed that because of how poorly I felt, I would go off of it. After having both a feeding tube and the Cyproheptadine as treatment options in the past, ultimately I decided that if I reached the point where I couldn’t get nutrition on my own, I would rather have a feeding tube put in than go the torture of the Cyproheptadine.
1 Comment
11/12/2022 07:54:56 pm
Culture use a specific former before story. Collection majority station sound discuss theory.
Reply
Leave a Reply. |
Ivy/POTS//EDS//MCAS//SIBO/
/Gastroparesis/ Archives
December 2018
|