It’s no secret that antihistamines, especially Benadryl, make a person drowsy. It only makes sense that with MCAS, the mast cells specifically in the brain are hyperactive producing an excess of histamine, cause a person to have a feeling of wakefulness. Even though normally being on a plethora of antihistamines would help someone fall asleep, because I’m taking so many, it sometimes has the adverse effect.
My nausea is especially what keeps me up at night. A few times, going to bed late has turned into an all-nighter; having stayed up for so long because of the nausea, even when it subsides, I’m just never going to get sleepy. It sucks, plain and simple. Not just because I feel like I’ve been hit by a bus the following day from lack of sleep, but also because I can’t drive anywhere (driving without sleep for 24 hours or more is just as bad, if not worse, than driving drunk). The worst part about an unpredictable sleeping schedule is when I’m awake, everybody else is asleep. The one good thing that comes out of pulling an all-nighter, is that I’ll go to bed early the next night, and get closer to a normal sleeping schedule. For awhile, my sleep was improved because I started taking the Doxepin, which knocks me out. But, when I was prescribed the Methylprednisolone (the steroid) in October, my sleep has gotten much worse. Because one of its biggest side effects of taking the Methylprednisolone for me is insomnia, I’m wide awake basically all night. Right now I’m getting an average of 4-5 hours of sleep, usually from about 5:30 a.m. to 10:00 a.m. Now that I’m starting to slowly taper off of the steroid, I am looking forward to getting better sleep in, what is hopefully, the near future!
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Ivy/POTS//EDS//MCAS//SIBO/
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December 2018
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